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Browsing Events tagged with #szrClear
Saturday, November 14th
DESCRIPCIÓN DEL EVENTO
On Saturday 14 November , starting at 09.00 (and approximately 7.5 hours ahead), fighters Anders Olsson, Jonas Frögren, Jon Werme & Mats Algotsson and Andreas Rixer will fight for Krama Era Barn against Sanfilippo's disease. Join and support and fight you too!
This iron gang is having a tough day together on
Saturday 14 November to support Hugging Your Children and research on Sanfilippo's disease. And you can also be a part of the event!
At Anders Olsson's home in Hagfors, Anders and Jon will embark on a Vättern round (300 km). Jonas and Mats will race a Vasaloppet (90 km) and Andreas is trying to complete a Lidingö race (300 km).
The Vättern round will be run on an exercise bike ( Zwift ), the Vasaloppet on a stake machine and the Lidingö race on a treadmill.
Due to the Corona situation, Krama Era Barn has had to cancel most of the events that were planned during the year, so that we now can do this feels great. We do not have time to wait, Sanfilippo's disease is relentless. We must achieve our goal of succeeding in funding research and reaching a clinical study and it is urgent! We want to spread awareness and succeed in reaching out to more people who have not heard of Sanfilippo's disease before and raise a good penny for the research. Hope that many want to participate and support the event, says Andreas Rixer.
How can you support / participate ?!
Donate
via Swish in Sweden to
number: 123 600 15 31
OR via www.SaveConnor.comOpens a new window from outside Sweden.
Share information about the event with friends and acquaintances.
Join and fight during the day with us (at a distance).
Follow the live broadcast on Youtube (and feel free to share it)
Join the event at Zwift and fight with us during the day, a short distance or all the way.
Take a photo / video while cycling, running, walking, rolling, jogging or doing any other form of exercise and post on social media under the hashtag #KämpaMotSanfilippo #KramaEraBarn #SaveConnor
TOGETHER WE MAKE A DIFFERENCE!
This iron gang is having a tough day together on
Saturday 14 November to support Hugging Your Children and research on Sanfilippo's disease. And you can also be a part of the event!
At Anders Olsson's home in Hagfors, Anders and Jon will embark on a Vättern round (300 km). Jonas and Mats will race a Vasaloppet (90 km) and Andreas is trying to complete a Lidingö race (300 km).
The Vättern round will be run on an exercise bike ( Zwift ), the Vasaloppet on a stake machine and the Lidingö race on a treadmill.
Due to the Corona situation, Krama Era Barn has had to cancel most of the events that were planned during the year, so that we now can do this feels great. We do not have time to wait, Sanfilippo's disease is relentless. We must achieve our goal of succeeding in funding research and reaching a clinical study and it is urgent! We want to spread awareness and succeed in reaching out to more people who have not heard of Sanfilippo's disease before and raise a good penny for the research. Hope that many want to participate and support the event, says Andreas Rixer.
How can you support / participate ?!
Donate
via Swish in Sweden to
number: 123 600 15 31
OR via www.SaveConnor.comOpens a new window from outside Sweden.
Share information about the event with friends and acquaintances.
Join and fight during the day with us (at a distance).
Follow the live broadcast on Youtube (and feel free to share it)
Join the event at Zwift and fight with us during the day, a short distance or all the way.
Take a photo / video while cycling, running, walking, rolling, jogging or doing any other form of exercise and post on social media under the hashtag #KämpaMotSanfilippo #KramaEraBarn #SaveConnor
TOGETHER WE MAKE A DIFFERENCE!
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